Good company in a journey makes the way seem shorter. — Izaak Walton
My journey began three years ago when my husband and I were thirty-four and he was diagnosed with Hodgkins Lymphoma. My husband is in remission and as far as that is concerned doing quite well. What we are now dealing with is the after effects of the chemotherapy. He has a congitive disfunction due to the chemo and short term memory loss. He has good days and bad days and even good moments and bad moments. I believe that more is going on than just the cognitive disfunction and the memory aspects as he has periods where he is not him self. He will loss his thoughts, his ability to hold a conversation, his knees give out and he needs assistance to walk, he jumbles his words and says things he doesn’t mean, he gets increasingly more confused and anxious. Once he has rested or slept he has no recollection of what happened. He has a complete blank spot on his day, sometimes losing the entire day.
I wanted to start a blog on what we are going through as there isn’t much out there for young couples where one is the caregiver to the other. Support groups for caregivers are aimed at adult children taking care of their parents or for spouses taking care of a spouse with dementia. There really isn’t a whole lot for us younger folks who I believe fall through the cracks. I have talked to many people in my area about such support groups and most of them are leery about allowing me to join. They feel that it may not be good for the others who are there. Might also have something to do with that fact that the only support groups for caregivers I find are for dementia.
I will write more as time goes on. I hope you find this blog helpful.
The young caregiver 